MEET JACOB


Jacob was only 3 years old when him and his family were thrown into the storm. It started at Father's Day dinner when his mother noticed that he had been limping. What could have been otherwise considered a typical injury of an active 3 year-old boy quickly began to spiral into a world of medical uncertainties, poking and prodding and, ultimately, Leukemia.

In June 2015, Jacob was diagnosed with Myelodysplastic syndrome - a blood disorder that would require him to undergo a bone marrow transplant. Jacob received chemotherapy 5 times per week for 3 months in order to prepare for his transplant, while his doctors raced the clock to find him a donor that would be a match.

In September 2015, after a donor had been identified, Jacob's medical team discovered Leukemia cells during a lumbar puncture and diagnosed him with Acute Megakaryoblastic Leukemia M7 - a rare form of Leukemia that hides itself in bone marrow. He was immediately admitted to the hospital, where he remained for nearly two months. During that time, Jacob received 3 rounds of chemotherapy, from the course of September 2015 - January 2016 in which each round caused unfavorable medical conditions for Jacob. His mother, a single mother, fell behind in work and at school and was later required to resign from her position and drop her classes in order to spend time with Jacob. She remained vigilant and became her son's biggest advocate. 

Jacob received his bone marrow transplant on January 7, 2016. Immediately following, he fell incredibly ill, and remained in the ICU for nearly 2 weeks. During Jacob's time in the hospital, his mother attended church regularly, prayed, and held fast to her faith as she watched other children whose families she had grown accustomed to seeing at the hospital struggle to survive the same horrible disease. Jacob was finally released to go home in March of that year. When he returned home, he was restricted to a special diet and forced to remain indoors for his own safety. 


Jacob has been in remission since he completed chemotherapy in 2016. He is a big brother to two boys - Isaac and Christian. He does well in school, despite having suffered Graft-versus-host disease, hearing loss, liver issues, and an excess in iron build up due to the multiple blood transfusions that he received during treatment. Even still, Jacob is the same calm, laid back child that he always was, and just as playful and sneaky as any other 6 year-old little boy. 


Jacob currently shares a room with his brothers. Together, the boys share a love for superheroes. Jacob's mother may have sparked his love for superheroes by explaining his treatment injuries as injection sites for "Super Juice." Little does she know, she, too, is a hero. Together, she and Jacob are making it through to the other side of the storm. Although Jacob still has a long road ahead of him, they refuse to throw in the towel or give up hope. For Jacob, a Room to Thrive would provide a place of comfort and peace. A getaway, where Jacob can hang up his cape, set aside his fight, and and continue to thrive each and every day. Help us give Jacob a Rooms to Thrive™ by donating here today.

AMOUNT FUNDED

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MEET GUEST INTERIOR DESIGNER Kimberli Bayani

Meet Kim Bayani. Born and raised in Poway, California and currently resides in Valley Center, California enjoying the farm to table lifestyle. Kimmi’s currently a student working toward her Interior Design degree. She’s always had a passion for design whether it be architecture, fashion or interior design. Her parents really inspired her to pursue this passion. Her dad is a custom home builder in the local area, and her mom provides both the interior and landscape designs for his projects. She has experience in event design and it is something she’s enjoyed doing as a hobby over the last several years. Her style is a reflection of her personally. Loving the Farmhouse style with a little Bohemian and Americana touches. Her favorite thing is to mix vintage with new, giving a classic but urban look and feel. She’s looking forward to collaborating with the Carsyn Neille Foundation in creating unique and comforting spaces that meet each child’s needs.  ➕Welcome to our crew Kimmi and we’re so grateful for the amazing contributions you’ve made with Ella, Soleil and Grayson's Room to Thrive.  IG:  @MintNThyme

Meet Kim Bayani. Born and raised in Poway, California and currently resides in Valley Center, California enjoying the farm to table lifestyle. Kimmi’s currently a student working toward her Interior Design degree. She’s always had a passion for design whether it be architecture, fashion or interior design. Her parents really inspired her to pursue this passion. Her dad is a custom home builder in the local area, and her mom provides both the interior and landscape designs for his projects. She has experience in event design and it is something she’s enjoyed doing as a hobby over the last several years. Her style is a reflection of her personally. Loving the Farmhouse style with a little Bohemian and Americana touches. Her favorite thing is to mix vintage with new, giving a classic but urban look and feel. She’s looking forward to collaborating with the Carsyn Neille Foundation in creating unique and comforting spaces that meet each child’s needs.

➕Welcome to our crew Kimmi and we’re so grateful for the amazing contributions you’ve made with Ella, Soleil and Grayson's Room to Thrive.

IG: @MintNThyme